Planning for high school....the stress involved

It is early on Wednesday morning and I am blogging now since I didn't do it last night.  Bek starts high school in about 2 weeks and she is so excited.  We think she is more than capable but worry about the stress of school work, seminary in the morning, and extra-curricular activities.

With the change in medicine this summer, she is doing soooo much better! The difference (when the temperatures are not in the 90's) is amazing but will it continue when the daily grind begins? 

There is no way to know.  The problem with being one of the few parents with a teen or child with fibromyalgia is just this: there is NO information.  Yes, everyone handles fibro differently but at least with adults there is information available.  All we can do is apply that same information to teens and hope it applies.  That is so frustrating for me. 

As a parent, watching my darling daughter struggle with this is so hard.  But her faith and strength are amazing.

Today is busy and we shall see how it goes. The temperature is still supposed to be in the upper 80's.

The trip home...long

We made it home this morning and the trip was so long.  I wanted to stop for a second night but John and even Bek overruled me.  Bek did great!!  I was really surprised that she did so well although it did seem to create a slight flair.  She is really sore and stiff but hey 1350 miles in the car over 2 days will do that to anyone. 

Now to prepare for school and fall.  Light is already starting to decrease dramatically and we have a lot to do.  Hopefully we can take it slow so Bek isn't in a flair when school starts.

Vacation time!

When you have a giant breed dog, 2 cats, about 12 bunnies plus a teen, vacations can get very interesting!!! 

Our newest Saint Bernard is Aiviq (it means walrus in Yupik) and he is a puppy so he had to come on vacation with us.  Then finding someone to watch the cats,
rabbits and the garden is always a fun adventure but somehow, despite all the challenges this summer, we have spent the last week in Maine with John's parents.

 It has been an enjoyable vacation but always we have to work around Bek and her health issues.  Not that it has been any kind of problem since we haven't done anything major but she has had a few bad nights with little sleep.  That hasn't been enough to stop her from shopping with Nana for several days.  They managed to pick up an entire wardrobe for school in just a few days,  Shoes, tops, lots of pants, and a few more dresses.

We head home tomorrow and that will set a flair off if anything will.  2 days in the car for 1350 miles is not fun but we really don't want to add an extra day.  And lest anyone think we are pushing Bek, think again, she is actually with her dad on this.  I am the one who wants 3 days and 2 nights but they have overruled me.  So, I will suffer in the car and we will get home sometime Friday night or Saturday morning.  Of course, the blessing of not making reservations is that we can always stop if needed.  Mom may win after all!  LOL!

Once we are home I will update the blog again and post some pictures.  Aiviq had a great time with the ponies but we missed pictures.  I did get some pictures of him in the yard and Bek with her cousins.  It has been a wonderful trip. 

I am the mother of a teenage girl with fibromyagia

I am the mother of a teenage girl with fibromyalgia!

Just saying that makes my heart hurt in so many ways.  Not just for the challenges it brings but for opportunities in life that my darling daughter has missed and will miss as she travels through life with this problem.

Yet as I watch her grow and change over this last year, she is an amazing example to me of strength, endurance and courage.

As she works to manage high school this year, start a support group for teens with fibro and try have a life, this blog will follow the journey and be my support.