I really am going to do better at keeping a blog. In fact, if ambition strikes, I might keep one for my family and one for fibro mom. Wow- that would seriously be interesting,
School ended on a good note for Rebekah. Although she was about 4 weeks behind by May 1st, she was able to pull a C, 2 A's and 2 A- s for the semester. Her GPA for the year is a 3.4 which her doctors, school counselor and family all find incredible. Of course, a few things did get delayed. Science is being done this summer via BYU on-line high school, Driver's Ed was just completed during a 3 week summer school class, and in order to have all her classes plus a study break next year she is taking English 10 this summer as well. But so far so good.
The weather has been warm on and off which still causes problems with Beks health. Temps in the house can get in the 80's which make for misery but it is even worse when a person is heat sensitive. Luckily she likes her basement bedroom which stays cool in the summer.
July is going to be a very busy month for us but I plan to post again.
Wednesday, July 2, 2014
Saturday, March 1, 2014
Being the mom to an incredibly stronge young woman comes with the good and the bad. She has seen several doctors this week and more than ever she was in charge. I was just along to drive and approve. These experiences gave me a glimpse into the incredible woman she will be very soon.
The last few months have revolved around tonsils. Last year was mononucleosis and this year it is apparently going to be the year of the tonsils. Several rounds of antibiotics, about 15 days of missed school since Christmas and finally we may get to see about surgery. Ben is desperate for surgery as illness is really messing up her singing.
March is the month for the ENT and perhaps surgery, some new glasses and hopefully a few rabbit shows. Now if the weather will just warm up.
The last few months have revolved around tonsils. Last year was mononucleosis and this year it is apparently going to be the year of the tonsils. Several rounds of antibiotics, about 15 days of missed school since Christmas and finally we may get to see about surgery. Ben is desperate for surgery as illness is really messing up her singing.
March is the month for the ENT and perhaps surgery, some new glasses and hopefully a few rabbit shows. Now if the weather will just warm up.
Tuesday, January 7, 2014
Hopefully 2014 will be a better year
It is January 7th for another 18 minutes and I am already worried about whether Bek will head back to school for her second day. In all fairness, the weather has prevented school for 3 of the previous 4 school days. Friday the 3rd everyone had school. Wind chills of -35 to -50 makes busing rather dangerous.
Now my concern is about the swollen tonsils, super pale color and severe fatigue Bek is experiencing. Is it mono reappearing or is it another round of tonsillitis? She only has 10 days until the end of the semester and still needs to catch up in a couple of classes. So we desperately need to keep her healthy. Not easy when the house is in the low 60's on the main level and colder than that downstairs.
My prayers for her include strength and endurance to keep up in school. Watching her struggle with stress of not keeping up with her friends at school and church makes me so sad. Plus we received invitations to Marshall's open house again today and she is really bummed that she can not attend. They simply can not work with someone so sick. As a private school their standards are such that her health simply won't allow her to keep up.
How to help her understand that Heavenly Father loves her and knows what she is going through. John and I love her also and that makes some of this so hard to watch.
Now my concern is about the swollen tonsils, super pale color and severe fatigue Bek is experiencing. Is it mono reappearing or is it another round of tonsillitis? She only has 10 days until the end of the semester and still needs to catch up in a couple of classes. So we desperately need to keep her healthy. Not easy when the house is in the low 60's on the main level and colder than that downstairs.
My prayers for her include strength and endurance to keep up in school. Watching her struggle with stress of not keeping up with her friends at school and church makes me so sad. Plus we received invitations to Marshall's open house again today and she is really bummed that she can not attend. They simply can not work with someone so sick. As a private school their standards are such that her health simply won't allow her to keep up.
How to help her understand that Heavenly Father loves her and knows what she is going through. John and I love her also and that makes some of this so hard to watch.
Tuesday, October 29, 2013
Things most parents don't do....
Yesterday Bek gave a presentation to her teachers about her health issues and how they affect her ability to participate in school and do home work. She did a fantastic job and I am incredibly proud of her but part of me still cries out "why my daughter"!
The teachers all commented on her maturity and ability to discuss her health issues with them. Yet, that maturity makes it more difficult for her to interact with her peers on a daily basis. She takes school seriously when she is there because of her frequent absences. For teens without health issues, it is simply impossible to understand and that makes it difficult to empathize.
The teachers all commented on her maturity and ability to discuss her health issues with them. Yet, that maturity makes it more difficult for her to interact with her peers on a daily basis. She takes school seriously when she is there because of her frequent absences. For teens without health issues, it is simply impossible to understand and that makes it difficult to empathize.
Wednesday, August 21, 2013
Planning for high school....the stress involved
It is early on Wednesday morning and I am blogging now since I didn't do it last night. Bek starts high school in about 2 weeks and she is so excited. We think she is more than capable but worry about the stress of school work, seminary in the morning, and extra-curricular activities.
With the change in medicine this summer, she is doing soooo much better! The difference (when the temperatures are not in the 90's) is amazing but will it continue when the daily grind begins?
There is no way to know. The problem with being one of the few parents with a teen or child with fibromyalgia is just this: there is NO information. Yes, everyone handles fibro differently but at least with adults there is information available. All we can do is apply that same information to teens and hope it applies. That is so frustrating for me.
As a parent, watching my darling daughter struggle with this is so hard. But her faith and strength are amazing.
Today is busy and we shall see how it goes. The temperature is still supposed to be in the upper 80's.
With the change in medicine this summer, she is doing soooo much better! The difference (when the temperatures are not in the 90's) is amazing but will it continue when the daily grind begins?
There is no way to know. The problem with being one of the few parents with a teen or child with fibromyalgia is just this: there is NO information. Yes, everyone handles fibro differently but at least with adults there is information available. All we can do is apply that same information to teens and hope it applies. That is so frustrating for me.
As a parent, watching my darling daughter struggle with this is so hard. But her faith and strength are amazing.
Today is busy and we shall see how it goes. The temperature is still supposed to be in the upper 80's.
Saturday, August 17, 2013
The trip home...long
We made it home this morning and the trip was so long. I wanted to stop for a second night but John and even Bek overruled me. Bek did great!! I was really surprised that she did so well although it did seem to create a slight flair. She is really sore and stiff but hey 1350 miles in the car over 2 days will do that to anyone.
Now to prepare for school and fall. Light is already starting to decrease dramatically and we have a lot to do. Hopefully we can take it slow so Bek isn't in a flair when school starts.
Now to prepare for school and fall. Light is already starting to decrease dramatically and we have a lot to do. Hopefully we can take it slow so Bek isn't in a flair when school starts.
Wednesday, August 14, 2013
Vacation time!
When you have a giant breed dog, 2 cats, about 12 bunnies plus a teen, vacations can get very interesting!!!
Our newest Saint Bernard is Aiviq (it means walrus in Yupik) and he is a puppy so he had to come on vacation with us. Then finding someone to watch the cats,
rabbits and the garden is always a fun adventure but somehow, despite all the challenges this summer, we have spent the last week in Maine with John's parents.
It has been an enjoyable vacation but always we have to work around Bek and her health issues. Not that it has been any kind of problem since we haven't done anything major but she has had a few bad nights with little sleep. That hasn't been enough to stop her from shopping with Nana for several days. They managed to pick up an entire wardrobe for school in just a few days, Shoes, tops, lots of pants, and a few more dresses.
We head home tomorrow and that will set a flair off if anything will. 2 days in the car for 1350 miles is not fun but we really don't want to add an extra day. And lest anyone think we are pushing Bek, think again, she is actually with her dad on this. I am the one who wants 3 days and 2 nights but they have overruled me. So, I will suffer in the car and we will get home sometime Friday night or Saturday morning. Of course, the blessing of not making reservations is that we can always stop if needed. Mom may win after all! LOL!
Once we are home I will update the blog again and post some pictures. Aiviq had a great time with the ponies but we missed pictures. I did get some pictures of him in the yard and Bek with her cousins. It has been a wonderful trip.
Our newest Saint Bernard is Aiviq (it means walrus in Yupik) and he is a puppy so he had to come on vacation with us. Then finding someone to watch the cats,
rabbits and the garden is always a fun adventure but somehow, despite all the challenges this summer, we have spent the last week in Maine with John's parents.
It has been an enjoyable vacation but always we have to work around Bek and her health issues. Not that it has been any kind of problem since we haven't done anything major but she has had a few bad nights with little sleep. That hasn't been enough to stop her from shopping with Nana for several days. They managed to pick up an entire wardrobe for school in just a few days, Shoes, tops, lots of pants, and a few more dresses.
We head home tomorrow and that will set a flair off if anything will. 2 days in the car for 1350 miles is not fun but we really don't want to add an extra day. And lest anyone think we are pushing Bek, think again, she is actually with her dad on this. I am the one who wants 3 days and 2 nights but they have overruled me. So, I will suffer in the car and we will get home sometime Friday night or Saturday morning. Of course, the blessing of not making reservations is that we can always stop if needed. Mom may win after all! LOL!
Once we are home I will update the blog again and post some pictures. Aiviq had a great time with the ponies but we missed pictures. I did get some pictures of him in the yard and Bek with her cousins. It has been a wonderful trip.
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